CARE Panel: The Ethics of Data Sharing in Research

Tuesday, March 17, 2020
10-11:30 a.m.
165 Thompson Library

In an era of Big Data and collaborative science, there has been a push for researchers, universities and health systems to share data. The massive datasets that result from sharing have the potential to unearth unique insights and make powerful predictions that will positively benefit human health and wellbeing. However, data sharing on a massive scale also introduces new ethical risks – including threats to privacy, challenges for informed consent, the commodification of personal information, and undermining the public trust in research. This panel we will discuss these risks as well as role that universities like Ohio State should play in safeguarding individual rights and in equitably distributing the benefits and burdens of research.

Panelists include Kayte Spector-Bagdady (Department of Obstetrics and Gynecology and Chief of Research Ethics Service in the Center for Bioethics and Social Sciences in Medicine, University of Michigan Medical School); Timothy Huerta (Family Medicine, OSUMC; Chief Research Information Officer (CRIO) College of Medicine and Wexner Medical Center); Christina Drummond (Moritz College of Law Program on Data and Governance).

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The Center for Ethics and Human Values’ CARE program is co-sponsored by the Office of Research with support from the OSUMC Center for Bioethics and the College of Public Health.